Knowledge Websites
For Rehabilitation in Childhood Disability
Parent Project Muscular Dystrophy (PPMD) is the largest most comprehensive nonprofit organization in the United States focused on finding a cure for Duchenne muscular dystrophy—our mission is to end Duchenne. They offer amazing resources for families and clinicians wanting to provide excellent care for boys with DMD & related conditions
CanChild is in the School of Rehabilitation Science at McMaster University in Canada and is the hub in an academic network of international scientists that conduct applied clinical and health services research concerning children and youth with a variety of developmental conditions. They are most well known for their work in Cerebral Palsy and Developmental Coordination Disorders and their website provides an extensive resource of information, tools and resources for therapists and families
EVIDENCE CENTRE: All things related to EBP in childhood rehabilitation. SUNNYHILL E-LEARN: Online courses you need to know about TECHNOLOGY FOR THERAPISTS: virtual reality, robot therapy,video games etc. EVIDENCE4PRACTICE: Research summarized in clinician friendly formats PLUS resources for school therapists, ICF e-tools, a list of pediatric research journals, Pediatric rehabilitation innovation & research projects in BC PLUS more
This website collates clinical guidelines on rare diseases that have been evaluated using the AGREE-II tool. "Guidelines on all aspects of care are included from diagnostic tests through to treatments and organisations of care." Examples of the diseases covered include Duchenne Muscular Dystrophy, Joint Hypermobility Syndrome and Cystic Fibrosis
The Cerebral Palsy Alliance is an Australian organization that provides services to people with cerebral palsy and their families. Their research foundation includes a Content Governance Group who research and appraise best available evidence to make recommendations around INTERVENTION & THERAPIES. It’s also worth checking out their ASSESSMENT & OUTCOME MEASURES resource page.
Product Websites
by Therapists for Therapists
A collaboration between pediatric therapist Nancy Hylton and orthotist Don Buethorn in 1980 resulted in a thin, flexible contoured brace that would eventually become the DAFO 4 -- still one of the most popular brace styles today. They are now the industry's leading manufacturer of pediatric orthoses, creating effective solutions for patients worldwide. Check out Nancy's wiredOn Interview for brilliant insights and inspiration
A great place to shop for everything kid-friendly, affordable, and therapeutic. Fun and Function was started by an OT with a strong emphasis on sensory activities but you'll find great products to cater for all developmental areas, ages and diagnoses here.
TheraTogs are an orthotic garment systems designed to provide gentle, prolonged muscle stretch and alignment guidance that replicates the manual positioning and supervised therapy that the rehab clinician offers in a typical session.Or, as our pediatric clients call them: “my SuperSuit!” Theratogs were invented by pediatric physical therapist Beverley Cusick. Listen to her wiredOn interview and get the inside scoop
An online resource for special education, pediatric occupational and physical therapy. A huge range of downloadable digital products, links to online courses, practice snippets and more.
Milestones Therapy is an Australian based company that was established in 2010, by two Occupational Therapists who are passionate about working with children, perfect practice, and carryover of treatment gains. They supply a range of therapeutic products, specialising in wearable products for the Paediatric population and also provide clinical education opportunities
SPIO is a highly flexible bracing system made from a specialized multi-directional stretch that's designed to provide and enhance deep pressure sensory input around and toward the midline of the body to improve dynamic stability and postural activation. Listen to Nancy Hylton's interview to get an in depth understanding
Volunteer Organizations
Working for children with disabilities
 Malamulele OnwardWe are a creative team of people who invest in rural CP services and offer innovative solutions to improve the quality of life of children with CP and their families. Our strength lies in the fact that our team consists of therapists, parents of children with CP and a young adult affected by CP. Together with our dedicated board of directors, we are able to contribute a range of perspectives and ideas when tackling the current challenges faced by children with CP and their families. |  Imprint HopeIn 2016, Clare founded Imprint Hope, a non-profit organization, designed to raise awareness, break down barriers, and overcome the stigma that children with disabilities in Uganda face on a daily basis. Imprint Hope envisions a world where all children with disabilities are appreciated for their unique talents and provided an opportunity to actualize their full potential. |  Enabling the FutureThe e-NABLE Community is an amazing group of individuals from all over the world who are using their 3D printers to create free 3D printed hands and arms for those in need. Made up of teachers, students, engineers, scientists, medical professionals, tinkerers, designers, parents, children, scout troops, artists, philanthropists, dreamers, coders, makers and every day people who just want to make a difference and help to “Give The World A Helping Hand.” |
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 Adaptive Design AssociationAdaptive Design Association (ADA) aims to ensure that people with disabilities receive the custom adaptations they need to live healthy lives, fulfill potential, & to promote education, inclusion, widespread replication, & social justice. The users, dreamers, and makers that are found at the Adaptive Design Association can be found everywhere. Where there is a will there is a way, & it is the mission of ADA to provide you with the skills, material & confidence to make it happen. |  Kyaninga Child Development CentreKCDC offers a unique intervention in children with disabilities’ lives through a holistic approach that aims at “helping all children reach their full life potential”. Our strategies are research and rights based, in line with the United Nations Convention on the Rights of Persons with Disabilities Charter of 2006. We provide occupational therapy, physiotherapy and speech language therapy assessment and rehabilitation to children aged 0-16 |  Home of HopeYou can’t change the world, but you can change the world of a child! Home of Hope is an organization that cares for children without prospects for the future. |
 RePlay for KidsThe mission of RePlay for Kids is to increase the availability of toys and assistive devices for children with disabilities. We repair, adapt and distribute toys and assistive devices free of charge. In so doing, we strive to raise awareness and increase the number and variety of toys and devices available to the children who need them. |
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